About the Commons

With the rapid pace of scientific discovery, there is a continuing need to identify and fill gaps in the knowledge about, access to, and appropriate use of the latest oncology precision medicine tools.

While individual oncology patient advocacy and provider organizations are prioritizing development of resources, tools, and programs to support their core constituencies in taking maximum advantage of the promise of precision medicine, the Cancer Precision Medicine Commons (“the Commons”) provides a forum for information and resource sharing among these groups, to allow for collective efforts and synergistic progress.

Launched in 2021 to build upon the collaboration sparked by the successful activities of the Consistent Testing Terminology Working Group, the Commons initiative provides an opportunity for multi-stakeholder organization leaders to share information and resources aimed at advancing precision medicine for oncology patients, while identifying and collectively exploring opportunities for multi-stakeholder, cross-tumor collaborations that could engage activities through potential work groups.

The group convenes quarterly on an annual basis with workgroups that meet throughout the year. See the 2023 Year in Review.

Our Priorities

Overarching priorities for Commons members include:

  • Enhancing education and awareness of biomarker testing and genetic testing for inherited cancer risk

  • Supporting healthcare providers in community settings, including ensuring physicians have tools to interpret test results

  • Collecting/collating data to support testing recommendations

  • Reducing the complexity of testing reports

  • Implementing consistent testing terminology

  • Advance policy efforts to support access to testing, including addressing gaps in coverage and reimbursement

The Commons is hosted by LUNGevity Foundation through support from its Precision Medicine partners (see www.LUNGevity.org for more information).

 Planning for Commons meetings and activities is overseen by a five-member steering group, currently composed of leaders from the Cholangiocarcinoma Foundation, FightCRC, FORCE, LUNGevity Foundation, and PAIR.

2023-2024 Steering Group

Stacie Lindsey, Cholangiocarcinoma Foundation

Anjee Davis, FightCRC

Sue Friedman, FORCE

Nikki Martin, LUNGevity Foundation 

Deb Collyar, PAIR

Participating Advocacy Organizations

Participating Professional Organizations